September 21, 2011

...Eva Grace...



Where to start with this blog post...My heart is so full of gratitude at having had the opportunity to meet such a sweet little person.

Miss Eva Grace is eight months old today - she has spent many of those beautiful eight months fighting SMA Type 1.  As her daddy said today, "with an SMA type 1 baby, you don't celebrate the years together, but the months together." And celebrate they have...

I was asked to do this session by one of my dear clients Joy as the family didn't have any formal-ish family portraits together and they really wanted some of them all and of little Eva.  I am so very honored that they trusted me to capture them as they are right now...Full of hope, life and lightness.

Eva the Diva as she is so awesomely nicknamed loves music and she loves to sing - I got to hear her sweet little voice while I was photographing her - soooo indescribably cute!!  She is known for her bright smile and is loved by so many people - her group page is 700+ strong with daily thoughts, prayers, and love being posted by her supporters.  The medical staff that helps her is just wonderful - they clearly adore her, which is a given once you meet this little princess.

She clearly loves her big brother Noah, displaying that signature smile when he is close to her.  She also loves Mickey Mouse clubhouse and anything Disney.  As her mother says, "there really isn't much that she doesn't love."

This is a difficult blog post to write, but I want to say that Eva Grace is a little fighter and we are all praying that she continues to fight as hard as she has been against SMA.  I have thought about her pretty much constantly since hearing her story and meeting her and I know everyone that hears her story does the same.  I hope that these images do justice in representing her sweetness, beauty, and will to live, to fight, and most of all to love.

Life is short, fleeting, but also so very beautiful...
























To follow Eva's story and to get updates, you can join her group of wonderful fans at: www.facebook.com/groups/EvasMiracle

1 comment:

  1. Hi - How do we order pictures? (marisacriscio@sbcglobal.net)

    ReplyDelete